Bleeding Disorders Awareness Month at CoachArt
Join CoachArt in supporting the #RedTieCampaign for Bleeding Disorders Awareness Month
Three million people across the U.S. live with bleeding disorders that can cause extended bleeding after injury, surgery or trauma, and can be life-threatening if not treated effectively.
March is Bleeding Disorders Awareness Month. The National Hemophilia Foundation’s Red Tie Campaign raises funds and awareness to find better treatments and cures for bleeding disorders.
To share awareness of Bleeding Disorders, CoachArt is participating in the National Hemophilia Foundation’s #RedTieCampaign this month! You can show your support for Bleeding Disorders Awareness Month and get involved here.
Types of Bleeding Disorders
Bleeding disorders are a group of conditions that result when the blood cannot clot properly.
- Hemophilia A (Factor VIII [FVIII] deficiency)
- Hemophilia B (Factor IX [FIX] deficiency)
- Hemophilia C (Factor XI [FXI] deficiency)
- von Willebrand’s disease (types I, II, III, aVWS, and pseudo-VWD)
- Factor II (FII) deficiency
- Factor V (FV) deficiency
- Factor VII (FVII) deficiency
- Factor X (FX) deficiency
- Factor XII (FXII) deficiency
- Idiopathic thrombocytopenic purpura (ITP)
- Acquired platelet function defects
- Congenital platelet function defects
- Congenital protein C or S deficiency
- Disseminated intravascular coagulation (DIC)
- Glanzmann disease
Hemophilia is a disease that prevents blood from clotting properly, so a person who has it bleeds more than someone without hemophilia does. It’s a genetic disorder, which means it’s the result of a change in genes that was either passed from parent to child or happened as a baby was developing in the womb. Hemophilia results from a missing or deficient protein needed for blood clotting. The two main forms are hemophilia A (factor VIII deficiency) and hemophilia B (factor IX deficiency).
Hemophilia Fast Facts
- Hemophilia A occurs in 1 in 5,000 live male births.
- Hemophilia A is about four times as common as hemophilia B.
- 400 babies are born with hemophilia each year.
- The number of people with hemophilia in the United States is estimated to be about 20,000 individuals.
von Willebrand’s disease
Von Willebrand disease (VWD) is a genetic disorder caused by missing or defective von Willebrand factor (VWF), a clotting protein. VWF binds factor VIII, a key clotting protein, and platelets in blood vessel walls, which help form a platelet plug during the clotting process.
von Willebrand’s Disease Fast Facts:
There are three main types of VWD and several subtypes.
Type 1 VWD is the most common and mildest form. The body has low levels of von Willebrand factor. People with type 1 may also have low levels of factor VIII, another blood-clotting protein. According to the Centers for Disease Control and Prevention (CDC), 85% of people treated for VWD in the US have type 1.
Type 2 VWD the body produces a normal amount of von Willebrand factor, but the clotting protein doesn’t work as it should. There are four subtypes of type 2 VWD—2A, 2B, 2M and 2N—depending on the problem with the von Willebrand factor. Each subtype is treated differently.
Type 3 VWD is the rarest and most severe form. The body makes little or no von Willebrand factor and has low levels of factor VIII.
Von Willebrand’s Disease Resources:
Parents of Kids With Bleeding Disorders
For parents of children with bleeding disorders, BleedingDisorders.com offers a great article “Back-to-School Tips for Parents Caring for Children with Bleeding Disorders” which includes knowing bleeding disorders basics, informing staff on how to recognize a bleed, providing staff with your child’s care plan, and updating emergency contacts.
If your child has recently been diagnosed with a bleeding disorder, it may be difficult to process and many emotional reactions are common. Hemophilia of Georgia offers a wonderful resource called The Hemophilia, von Willebrand Disease & Platelet Disorders Handbook, which includes a section for parents of children with bleeding disorders.
Making A Difference for Families Impacted by Childhood Chronic Illness
Since 2001, CoachArt has matched volunteer coaches with students for one-on-one or group lessons in arts and athletics. Our vision is that one day every family impacted by chronic illness will be connected to a community of support and an opportunity to learn and grow together.
CoachArt offers free art and athletic lessons to chronically ill children and their siblings between the ages of 5-18 in Los Angeles, the San Francisco Bay Area, and San Diego. If your child has been diagnosed with a chronic condition, we invite you to fill out a student eligibility form or get in touch to learn if CoachArt is right for your child.
WAYS TO HELP
Do you have an artistic or athletic skill you would like to share with a child impacted by chronic illness? Become a CoachArt Volunteer.
Learn how you can get involved with CoachArt to help kids impacted by chronic illness. Visit coachart.org/get-involved.