10 Resources for Parents of Kids with Chronic Illnesses in San Diego
Kids living with chronic illnesses may feel isolated because of their condition. Parents and guardians of kids with chronic conditions may feel overwhelmed by the cost and demands of medical care, and may lack the resources to seek out or afford extracurricular activities.
Our vision at CoachArt is that one day every family impacted by childhood chronic illness will be connected to a community of support and an opportunity to learn and grow together. To support that vision, we want to share with you these 10 local resources for parents and guardians of kids with chronic illnesses in San Diego.
1. San Diego Health and Human Services – Chronic Disease & Health Equity Unit
Who They Are: Since 2010, CDHE has led administration of HHSA programming known as Healthy Works. Healthy Works is a cornerstone of the Building Better Health component of Live Well San Diego, the County of San Diego’s vision for creating healthy, safe, and thriving communities.
Their Mission: The mission of the Chronic Disease and Health Equity (CDHE) Unit is to promote wellness and prevention of illness, disability, and premature death from chronic disease by increasing health equity.
The Impact for Kids with Chronic Illnesses in San Diego: Healthy Works aims to reduce and prevent chronic diseases by making healthy living easier and more affordable in the places we live, work, learn, and play in San Diego County.
Learn More About Current Healthy Works’ Projects Here!
Who They Are: Rady Children’s Hospital-San Diego is the region’s pediatric medical center serving San Diego, Imperial and southern Riverside counties, treating children from birth to 18 years old as well as a small number of adults with certain conditions.
Their Mission: To restore, sustain and enhance the health and developmental potential of children through excellence in care, education, research, and advocacy.
The Impact for Kids with Chronic Illnesses in San Diego: Rady Children’s is ranked in all 10 pediatric specialties surveyed by U.S. News & World Report and has achieved Magnet® designation from the American Nurses Credentialing Center (ANCC), recognized as the gold standard in nursing excellence.
For information from medical conditions and first aid & safety to nutrition & fitness and easy-to-make recipes, visit the Rady Children’s Hospital’s Parent Health Library for online resources for parents here.
Who They Are: CaringBridge offers free websites and mobile apps to keep family and friends updated during a difficult time.
Their Mission: To amplify the love, hope, and compassion in the world, making each health journey easier.
The Impact for Parents of Kids with Chronic Illnesses in San Diego: Using CaringBridge, you can create a free website that has all the tools you need to keep your family and friends updated. For families struggling with the demands of childhood chronic illness, this is an excellent resource to help you:
- Share news and updates with everyone at the same time
- Communicate in a private, ad-free place
- Activate your community and coordinate help, and
- Receive emotional strength and support
Who They Are: The Friends of Scott Foundation was created in memory of Scott Delgadillo. Scott’s friends were so inspired by Scott that they desired to do something in his memory. They created Friends of Scott – Friends to Children with Cancer. The foundation mission helps ensure that children and their families get the emotional and financial support needed to cope with cancer.
Their Mission: The Friends of Scott Foundation’s (FOS) mission is to help children with cancer and their families.
The Impact for Kids with Chronic Illnesses in San Diego: FOS offers services to families impacted by childhood chronic illness such as scholarships funds, special events and activities, Special Dreams Program, gas cards, and groceries cards, etc.
Learn More about FOS Programs and Services for Families Here.
Who They Are: Ronald McDonald House Charities of San Diego provides a place to stay, meals, and the necessities of home so families can focus on caring for their critically ill or injured child being treated at a San Diego-area hospital.
Their Mission: Ronald McDonald House Charities of San Diego provides a “home-away-from-home” for families with children being treated for serious, often life-threatening conditions at local hospitals.
The Impact for Kids with Chronic Illnesses in San Diego: Ronald McDonald House Charities of San Diego provides services ranging from lodging, meals, family care center, and education & enrichment for families of seriously ill or injured children
Learn More About Services from Ronald McDonald House Charities of San Diego Here.
Who They Are: Make-A-Wish® San Diego is a 501(c)(3) non-profit organization that fulfills the wishes of children between the ages of 2 1/2 and 18 who have critical illnesses.
Their Mission: The Make-A-Wish mission is to create life-changing wishes for children with critical illnesses.
The Impact for Kids with Chronic Illnesses in San Diego: Make-A-Wish’s mission reflects the life-changing impact that a Make-A-Wish experience has on children, families, referral sources, donors, sponsors, and entire communities. Research has shown that Wishes can have a real and tangible impact on a child’s health, both physically and emotionally.
Wishes are granted based on referrals. You can view eligibility requirements, learn about the referral process, and find referral inquiry forms here.
Who They Are: For over 15 years, The Emilio Nares Foundation has provided free transportation for underprivileged children and their parents to and from the hospital for cancer-related appointments.
Their Mission: The Emilio Nares Foundation ensures that no child misses a cancer treatment due to lack of transportation.
The Impact for Kids with Chronic Illnesses in San Diego: Ride with Emilio currently serves children in San Diego, Orange, and Imperial Counties, with plans to expand to cities across the country. Some patients travel to an annual check-up to make sure their cancer didn’t return, while others use the service daily. Their annual impact provides 3,505 rides to 1,938 cancer-related appointments.
Learn More About Family Support Programs from the Emilio Nares Foundation Here.
Who They Are: San Diego Mom’s Blog helps families with kids connect local moms to each other and to local brands and businesses.
Resources They Offer:
- San Diego Local Guides
- Family-Friendly Events and Activities
- Guides for Summer Camps
The Impact for Kids with Chronic Illnesses in San Diego: As a top family resource blog covering the San Diego area, San Diego Mom’s Blog (SDMB) helps families navigate the San Diego with kid-friendly events, resources, and activities. While SDMB is not specifically designed for families impacted by childhood chronic illness, we think this is a valuable community resource that can help you take the stress out of planning time out and around San Diego with kids.
Who They Are: United Cerebral Palsy of San Diego County (UCP) is an agency committed to serving people with cerebral palsy and other disabilities and their families since 1958.
Working throughout the years to improve services with every step, UCP has program centers in San Diego and Escondido and numerous community-based programs serving hundreds of local citizens on a daily basis.
Their Mission: The mission of UCP of San Diego County is to advance the independence, productivity and full citizenship of people affected by cerebral palsy and other disabilities. By making solid steps, UCP can build a better community for all in the process.
The Impact for Kids with Chronic Illnesses in San Diego: UCP of San Diego offers a variety of services for children with disabilities and their families. Their goal is to assist children, and their families, to reach their highest potentials.
Learn More About UCP of San Diego’s Children’s Services Here.
Who We Are: CoachArt is a nonprofit organization that offers free arts and athletics lessons to chronically ill children and their siblings between the ages of 5-18. We serve families in Los Angeles, the San Francisco Bay Area, and San Diego. CoachArt students receive free high-quality arts and athletics lessons in both 1-on-1 and in group settings. View our FAQs for Parents.
Our Mission: CoachArt creates a transformative arts and athletics community for families impacted by childhood chronic illness.
The Impact for Kids with Chronic Illnesses in San Diego: Children living with chronic illness may feel isolated because of their condition. Frequent hospital visits and deficient immune systems often cause them to miss time in school and recreational activities. Families, overwhelmed by the cost and demands of ongoing medical care, often lack the resources to seek out or afford extracurricular activities. Healthy siblings are affected too when family resources are focused on a chronically ill child. CoachArt supports these families in the San Diego area by offering free recreational lessons that bring a sense of normalcy back into their lives.
Learn More About CoachArt and Fill Out a Student Eligibility Form for Your Child Here.
When a child requires ongoing care for a chronic condition, services offered by organizations like these can make a positive impact in your everyday life. What are some of your favorite local resources for parents and guardians of kids with chronic illnesses in San Diego? Please share them with us in the comments.
MAKING A DIFFERENCE FOR FAMILIES IMPACTED BY CHILDHOOD CHRONIC ILLNESS
Since 2001, CoachArt has matched volunteer coaches with students for one-on-one or group lessons in arts and athletics. Our vision is that one day every family impacted by chronic illness will be connected to a community of support and an opportunity to learn and grow together.
Ways to Help
Do you have an artistic or athletic skill you would like to share with a child impacted by chronic illness? Become a CoachArt Volunteer.
Learn how you can get involved with CoachArt to help kids impacted by chronic illness. Visit coachart.org/get-involved.